For the last 8 months I was dreading this most.
Carter has gone into relapse and has a brain tumor. They were able to remove over 50% of it. But there are also other tuners wrapping around his spine that cannot be removed. They will try chemo. But the issue with that is they are afraid he will not survive long enough to get chemo. They have to wait for him to heal from brain surgery in order to do chemo. We have been told that he could pass at any time, or in weeks.
There are alot of details that are very hard for me to type only iPhone.
The short version is
We thought he was constipated, went to the ER a few times, then nothing was adding up and one of his symptoms were making them think of neuromuscular problems, so they did a CT scan. They found a tumor covering a quarter of his brain and more cluttering around his spine. Them we were given a decision to operate, hopefully remove the large tumor, and relieve pressure, hope that they can figure out what type of tumor is is and a small possibly of chemo if he survives long enough to heal from the surgery, and prolong the inevitable. Or, not have surgery and just make him comfortable until he passes.
We made the decision to operate and have a tiny chance.
We have now found out that he has relapsed. Which is less in his favor as most infants with AML do not survive. They only thing we can hope for and donor is keep him comfortable.
I really don't know how to end this post.
I am sorry that you had to read this horrible news. But I am eternally greatful for all of the love and support you have all given to us.
I will be taking a break for a while, as I need as much time with him as I can get.
I love you all
Thank you
-Meg
(Posted to BBC on 02/10/12)
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