His blood counts aren't going up quick enough and has now refused to drink from bottle :(
(posted to BBC 08/20/2011)
Wednesday, October 19, 2011
Hello Carter-followers (hehehe)
So I have WONDERFUL news! He is off morphine (yay), mostly eating from the bottle (yay!), taking him off tpn (nutrition through IV) tomorrow (yay!), he is no longer loosing weight, he gained 4 oz(yay!), last day of antibiotics tomorrow (yay!) and.....drum roll please....best news yet....
Once his blood levels go up a bit....
WE CAN TAKE HIM HOME FOR 1-3 DAYS!! (length of time depends on how he is feeling)
I was (am still) so happy when the dr told me, incried! Lol
Here are some pics from today.
(can you tell I'm SUPER sleep deprived hehehe)
Thank you everyone for the wonderful support!
(posted to BBC 08/17/2011)
So I have WONDERFUL news! He is off morphine (yay), mostly eating from the bottle (yay!), taking him off tpn (nutrition through IV) tomorrow (yay!), he is no longer loosing weight, he gained 4 oz(yay!), last day of antibiotics tomorrow (yay!) and.....drum roll please....best news yet....
Once his blood levels go up a bit....
WE CAN TAKE HIM HOME FOR 1-3 DAYS!! (length of time depends on how he is feeling)
I was (am still) so happy when the dr told me, incried! Lol
Here are some pics from today.
(can you tell I'm SUPER sleep deprived hehehe)
Thank you everyone for the wonderful support!
(posted to BBC 08/17/2011)
Message from Carter
Hi march mommys! Thank you for all the love prayers and support! Ive had a rough few days but I'm feeling almost myself tonight! I don't have a fever anymore and my heart rate is almost normal! My daddy is sleeping over with me tonight so mommy can get some rest! But when mommy came to visit me tonight, I played with her!
(Posted to BBC 08/11/2011)
(Posted to BBC 08/11/2011)
Our Family
I keep updating on Carter, just wanted to share a pic and name of all of us
DH I'd Allan ODS is Noah I am Megan and you all know Carter
Thanks everyone for support!
(posted to BBC 08/11/2011)
DH I'd Allan ODS is Noah I am Megan and you all know Carter
Thanks everyone for support!
Carter update (sad)
So, we finished the first round of chemo( no more chemo until September) he was still looking so healthy. We were feeling very optimistic .
But things quickly changed.
Saturday, he came down with diarrhea, then he was sleeping more and very pale.
Sunday he started refusing to eat, and vomiting yellow stomach bile
Monday, still refusing to eat, now won't take the soother or his teethers. He would only put his tumb in the side of his mouth. His drool was very slimey (he now has mouth sores from the chemo- dr said they are like canker sores, but filling his mouth and throat) at night he spiked a fever of 104.3 and his heart rate was about 190bpm (very high)
He went to the PICU (pediatric intensive care unit) and was hooked up to morphine, 3 antibiotics, nutrition, saline, through IVs. While 5 doctors were poking and testing him, he was not moving, eye closed, buy moaning. This was the breaking point for me when I realized he may not make it. His torso and head were hot to touch, Nurses would put a cold cloth on his head, and in 5 mins the cloth was hot! His legs from the knee down were ice cold to touch, his arms from the elbow down were ice cold. His little body was slowly shutting down. But he is such a fighter! His fever went down, his arms an legs got warmer.
His fever is now 100.2, and his heart rate is 125bmp
He is back in his room! He is still very sleepy, is only awake for at most 10 mins at a time, but he needs his rest and is now responsive.
He also has a tube that goes in his nose to his tummy and the other end is a bag, instead of throwing up the bile it now goes into the bag.
All this is due to an infection that he got from the bacteria in his belly(everyone has it, but he had no immune system )
He played with a rattle today! So that was a big happy point of the day!
Thank you all for your ongoing support through carters journey
(posted to BBC 08/11/2011)
But things quickly changed.
Saturday, he came down with diarrhea, then he was sleeping more and very pale.
Sunday he started refusing to eat, and vomiting yellow stomach bile
Monday, still refusing to eat, now won't take the soother or his teethers. He would only put his tumb in the side of his mouth. His drool was very slimey (he now has mouth sores from the chemo- dr said they are like canker sores, but filling his mouth and throat) at night he spiked a fever of 104.3 and his heart rate was about 190bpm (very high)
He went to the PICU (pediatric intensive care unit) and was hooked up to morphine, 3 antibiotics, nutrition, saline, through IVs. While 5 doctors were poking and testing him, he was not moving, eye closed, buy moaning. This was the breaking point for me when I realized he may not make it. His torso and head were hot to touch, Nurses would put a cold cloth on his head, and in 5 mins the cloth was hot! His legs from the knee down were ice cold to touch, his arms from the elbow down were ice cold. His little body was slowly shutting down. But he is such a fighter! His fever went down, his arms an legs got warmer.
His fever is now 100.2, and his heart rate is 125bmp
He is back in his room! He is still very sleepy, is only awake for at most 10 mins at a time, but he needs his rest and is now responsive.
He also has a tube that goes in his nose to his tummy and the other end is a bag, instead of throwing up the bile it now goes into the bag.
All this is due to an infection that he got from the bacteria in his belly(everyone has it, but he had no immune system )
He played with a rattle today! So that was a big happy point of the day!
Thank you all for your ongoing support through carters journey
(posted to BBC 08/11/2011)
Pics/update on Carter
So now we are in isolation because his red/white blood counts are too low tht he was like no immune system. He is on a feeidng rube because he's not eating enough, he had a blood transfusion yesterday. But with all of this, he is still in good spirits! He is such a trooper! We are so proud and so lucky to have such a little fighter!
Unwanted to share some pictures with you before he starts loosing his hair, as well as to show how
Smiley he still is!
(these are all before the feeding tube was put in yesterday)
He fell asleep in the bumbo yesterday
With daddy
Dirty looks lol
Before he was hooked up to everything
I have more pictures on my computer
(posted to BBC 08/06/2011)
Unwanted to share some pictures with you before he starts loosing his hair, as well as to show how
Smiley he still is!
(these are all before the feeding tube was put in yesterday)
He fell asleep in the bumbo yesterday
With daddy
Dirty looks lol
Before he was hooked up to everything
I have more pictures on my computer
(posted to BBC 08/06/2011)
Carter moved into the hospital last night
:'(
So he has a rare case of acute myeloid leukemia .
We were admitted to the hospital last night at 9. This morning he has surgery (got a hikman to anyone who knows) and start aggressive chemo tomorrow. Sadly we will not be going home for at least 8-9 months.
(posted to BBC on 07/29/2011)
So he has a rare case of acute myeloid leukemia .
We were admitted to the hospital last night at 9. This morning he has surgery (got a hikman to anyone who knows) and start aggressive chemo tomorrow. Sadly we will not be going home for at least 8-9 months.
(posted to BBC on 07/29/2011)
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