Wednesday, November 9, 2011

Update :(

Carters had a infection  (this is the 3rd one) for over a week and the doctors have tried 4 different antibiotics, and nothing is clearing up the infection.
Tonight he goes for surgery to remove his Hickman
Then they will have a normal IV in his arm, then Saturday they do another surgery to put a PIK-line in his arm (basically the same as a Hickman, but in his arm going to his heart, rather then chest)
:( wish us luck 

Thursday, October 27, 2011

THE MOST AMAZING NEWS!!!

So I asked carters dr today if they think he will go into remission ater the 5th cycle... Her response was
HE ALREADY IS!!!
(the will still do the last two cycles just to make sure)
I cried for an hour of happiness!
I'm on cloud nine! He is such a strong boy!!

Small update :(

So, Carter was admitted as planned last night, to starte the 4th round today. Well, he went into sedation, my MIL left the room as usual-the rules. (I was at home). And an hour later (they do a tube change, echocardiograph, a bone Marrow biopsy and a lumbar puncture) he came out. Everything was good, until the dr came in just after I got here (noon)
They tried 3 different spots on his lower spine to get the LP, but they only got blood, not spinal fluid. They are saying he has a pocket of blood in his spine. They don't know why it is there, they sent us for an ultrasound. Please sent T&P's for nothing serious. Thank you 

Wednesday, October 26, 2011

Carter's at home pics


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Slouching lol
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Morning dances! Noah dances/dings his good morning song and Carter jumps around with excitement!
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I love this face :)
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And noahs new do that I did!
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...and his cheeseball smile lol
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These two boys make me so proud! They are my pride and joy! 
 
(posted to BBC on 10/25/2011)

Carter Update

Sorry for the delay! It's been a busy few days!

Carter is eating so much better! He is off the TPN, he still gets overnight feeds through the pump, but drinking more bottles. We have started him on finger foods as well, because he hates baby food!
He has another hickman infection, not as bad though. He was discharged on Friday and we go back tomorrow night to start his 4th round if chemo on Thursday.
He is doing great! He LOVES standing!
Noah LOVES having his brother home! They dance every morning it's adorable!
I will post pics later tonight
:) 


(posted to BBC on 10/25/2011)

Wednesday, October 19, 2011

Carter update!

It has been an eventful week and a half! Carter finished his 3rd round of chemo A week ago (only two more and hopefully remission!!)
Alot has happened so I will do short form! There's jay too much to type and I bye typing on my iPhone lol

- we found he is allergic to the antibiotics from the last infection( in the Hickman). He got a really bad rash all over his body. It's now gone
- Carter is eating between 2-4oz a day (1-3 oz at a time) so he is on TPN (nutrition through his IV tubes)
-for about a week now he has had diarrhea. They took stool samples and blood tests and found nothing (so ita most likely viral)
-he threw up his feeding tube (bottom Came out with vomit) on Wednesday an they wanted to give him
A break since he is on the TPN and he still has it out (which is nice to see him without a tube in his nose!!)
-we got to go on an LOA (day pass)
-we were supposed to go for another LOA torrow but sadly he has spiked a fever (101) and his heart rate is high.
-he has had 2 blood transfusions (due to low hemoglobin and plaitlets counts) in the last 48 hours, and is going to get another hemoglobin blood transfusion tonight
They have taken more blood tonight to find out the source of the fever (but they are thinking viral infection) and they are running him on "broad spectrum antibiotics" until they know what's wrong and which type of antibiotic is best to treat with.

So it's been an eventful week and a half but as always our little miracle marchie is a smiling trooper! Here are some recent pictures of Carter

Thank you everyone for your continuous and wonderful support! We love you all! (((hugs)))

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(posted to BBC on 10/10/2011)